January 18, 2024
ASAP Forms Community Leadership Council
The Alliance of Sleep Apnea Partners (ASAP) is pleased to announce the formation of its first Community Leadership Council, which will extend ASAP’s outreach into the wider sleep apnea community, empower more members of that community, and strengthen the link between sleep apnea patients and ASAP.
The Community Leadership Council’s mission is two-fold:
To elevate concerns, issues, and voices of people living with sleep-disordered breathing and obstructive sleep apnea to ASAP stakeholders to ensure patients’ needs are being addressed
To promote patient awareness of ASAP and its goal to represent patient voices within their communities
Members of the council are
David Bishop, a sleep equity advocate and the CEO and founder of the Sleep Equity Project, whose mission is to make sleep treatment accessible to all, regardless of socioeconomic status, gender identity, or geographical location.
Andre Puleo, a former sleep technologist who worked as a clinician in sleep labs for more than 25 years and later became a global director for sleep diagnostics and therapy. He went on to establish his own healthcare consultancy, AP3 Consulting.
Bob Stanton, a sleep apnea patient, former commercial truck driver, and current member of the ASAP board. A longtime patient advocate, he has presented at many sleep medicine conferences, co-authored twice in commentary articles in the Journal of Clinical Sleep Medicine, and been active in rule-making with the Federal Motor Carrier Safety Administration related to sleep apnea testing and treatment. Read his Apnea Story.
Jasmine Steele, U.S. Air Force veteran, teacher, and sleep apnea patient. After learning that her sleep apnea was the root cause of her many health problems, she became determined to help others and raise awareness about the importance of treatment. Read her Apnea Story.
Tom Wilson, founder of the Philips CPAP Recall Support Group. A former business executive, he founded the Facebook group after learning about the Philips Respironics CPAP/respiratory devices recall in 2021. Since then, he has focused on advocating for consumer rights and has engaged with both the federal government and national media to bring attention to the recall’s impact on patients.
Nicole Sondermann, a sleep coach, provides one-on-one coaching to patients who are referred for CPAP therapy. A board member of the Florida Association of Sleep Technologists, she also has provided education and training around the topics of shiftwork, sleep, and alertness. She primarily has focused on the transportation, first-responder, medical, and corporate workplace wellness.
Karen Eichenbaum Wolk, a sleep apnea patient, was diagnosed with mild cognitive impairment that likely resulted from undiagnosed and untreated obstructive sleep apnea.
Through the Community Leadership Council, community leaders and ASAP will exchange information, explore strategic initiatives, and share practical and educational resources related to sleep apnea with a focus on improving patients’ quality of life and care.
Council members also will guide and inform the ASAP about key issues affecting the sleep apnea community. As part of their role as champions of patient well-being and of ASAP’s mission and vision, they also will be involved in meeting other stakeholders, such as policymakers, community members, scientists, and researchers.
About the Alliance of Sleep Apnea Partners:
ASAP is a U.S.-based 501(c)(3) organization committed to promoting diagnosis, treatment, and prevention of sleep apnea on behalf of the patient community to advance the lifelong well-being or sleep apnea patients.
January 5, 2024
ASAP Welcomes Lori Schulman, Lisa Tate to Board
The Alliance of Sleep Apnea Partners (ASAP) is pleased to announce that sleep consultant Lori Schulman and Health Futures Consulting President Lisa Tate are joining its board of directors. Both bring a wealth of expertise to ASAP's work as a patient-centered advocacy organization to promote diagnosis, treatment, and management of sleep apnea and make sleep apnea a national healthcare priority.
Lori Schulman has more than 25 years of success in building early-stage sleep tech, health tech, and digital health companies. She has participated in the launch of more than 10 health-focused companies, including her first sleep start-up in 1997. She also serves as a Mentor to the Digital Health Hub Foundation International growth accelerator program for health tech companies.
“When I was recruited to join an OSA alternative medical device company, that’s when the lightbulb went off for me regarding making patients aware of alternative therapies for OSA,” she said. “I believe more people would undergo diagnosis for OSA if they knew that there are CPAP alternatives for them to consider. I continue to support new technologies that improve patient outcomes.
“My passion for sleep care stems from speaking with thousands of patients and clinicians over the past 25+ years and finding optimal solutions for each patient. I’m interested in the focus of ASAP and believe that I can make a difference to the Board of Directors, as well as to the patients and organizations we serve.”
Lisa Tate is a health care leader, patient advocate, and fund developer with a particular focus on advancing women’s health and health equity. As President of Health Futures Consulting, she is a catalyst for the growth of nonprofits, supporting them in funding their missions to realize their visions. Her career has been devoted to improving patient health. She began her career in public affairs at the American Academy of Pediatrics and the National Association of Children’s Hospitals. She later moved into leadership positions with multiple nonprofits, including serving as CEO of WomenHeart: the National Coalition for Women with Heart Disease and founding strategist for the patient-advocacy organization Heart Valve Voice.
She currently serves as Director of Partnerships and Strategic Development for the American Medical Women’s Association and as Treasurer on the board of the Alliance for Women’s Health & Prevention.
“In my work, I have seen that sleep apnea doesn’t get the kind of attention that other sleep disorders do, despite its seriousness,” she said. “I’m interested in supporting ASAP in bringing more recognition to sleep apnea and ASAP so they can advance their work.”
About the Alliance of Sleep Apnea Partners:
ASAP is a U.S.-based 501(c)(3) organization committed to promoting screening, diagnosis, treatment, and management of sleep apnea on behalf of the patient community to advance the lifelong well-being or sleep apnea patients.
November 21, 2023
ResMed Issues a Safety Notice on Popular Masks
ResMed has put out a safety notice letter regarding some of their most popular masks that use magnets on the straps.
If you DO NOT have a medical implant/device that can interact with a magnet, this notice does not apply to you and you do not need to stop wearing your mask.
If you DO have a medical implant/device such as pacemaker or defibrillator (see link below to ResMed site for more information), switch to a spare mask without magnets. In case you don’t have a spare mask, keep using your CPAP with your current mask but contact your Durable Medical Equipment (DME) or mask provider as soon as you can to discuss a replacement.
This notice still applies if you are within six inches of someone else with an implanted device (your spouse or a child perhaps).
Please be aware that DMEs may not be available because of the Thanksgiving holiday. Call them after the holiday. Until then keep using your CPAP unless your doctor advises you to stop. Stopping your treatment could cause more problems.
For more information, please visit this link provided by ResMed.
November 8, 2023
Alliance of Sleep Apnea Partners Welcomes Co-Founder Kathy Page as Chair
The Alliance of Sleep Apnea Partners, the patient advocacy organization founded in 2018 by sleep apnea patients to promote diagnosis, treatment, and prevention of sleep apnea, has elected Kathy Page to chair its board.
Page, a co-founder and past president of ASAP, most recently had served as the nonprofit group’s vice-chair. She succeeds Sarah Gorman, who has served as chair since 2021. Like Gorman, Page is a sleep apnea patient.
In addition to her work with ASAP, Page also serves on the board of MyApnea.org and is a member of the American Thoracic Society’s Public Advisory Roundtable. She also has participated as a patient representative in Patient-Centered Outcomes Research Institute grant funding, has been active in various National Institutes of Health meetings on sleep apnea and restless leg syndrome, and has participated in three Food and Drug Administration grant processes as a patient specialist. She also participated in drafting the “Women & Sleep Apnea” toolkit jointly produced by the Society for Women’s Health Research and ASAP.
“I am honored to be elected as board chair of ASAP,” Page said. “I would like to thank Sarah Gorman for her leadership in ensuring ASAP is established as a patient advocacy organization. Sarah has been a mentor and friend to me for many years, and I have tremendously enjoyed working with her. I look forward to supporting ASAP’s continued growth and success in advocating for people living with sleep-disordered breathing and sleep apnea,” said Page, who is based in Smithton, Missouri.
“We are delighted to have Kathy in this leadership role, as she is very well respected among the patient community,” said Dr. Monica Mallampalli, ASAP’s executive director. “Kathy is passionate about patient advocacy and will be instrumental in ensuring ASAP continues to be patient-oriented and patient-focused.”
About the Alliance of Sleep Apnea Partners:
Founded by sleep apnea patients in 2018, the Alliance of Sleep Apnea Partners is committed to promoting diagnosis, treatment, and prevention of sleep apnea on behalf of the patient community to advance the state of patient care and lifelong well-being of sleep apnea patients. ASAP does this by empowering patients through awareness and education, building support services within the patient community, identifying critical issues and gaps in patient care, and advocating for patient-centered policies.
June 30, 2023
A Wake-Up Call for Sleep Health: President Biden’s CPAP Machine Use Highlights Importance of Diagnosing,
Treating Obstructive Sleep Apnea
Untreated OSA can lead to serious health problems, including heart disease and type 2 diabetes. But early diagnosis and treatment can deliver quality sleep—and better overall health.
The White House announced this week that President Biden, who previously had been diagnosed with obstructive sleep apnea, has recently started using a CPAP machine—also known as Continuous Positive Airway Pressure therapy—to treat this common condition.
“We are thrilled to hear that the President has been proactive about his sleep health and has chosen to take action by using the CPAP therapy,” says Dr. Monica Mallampalli, executive director of Alliance of Sleep Apnea Partners (ASAP), a patient-focused group committed to promoting diagnosis, treatment, and prevention of sleep apnea. More than 30 million people in the United States alone are thought to have obstructive sleep apnea, a chronic condition that causes a person to stop breathing periodically during sleep.
Continuous Positive Airway Pressure therapy currently is the gold standard for treating obstructive sleep apnea. It works by providing a constant flow of air pressure through a face mask to keep the wearer’s airways open during sleep. Although it can be difficult to get used to a CPAP machine, once patients adjust they often find they are able to breathe better, resulting in quality sleep and better overall health.
Obstructive sleep apnea causes a loss of oxygen that can be detrimental to overall health, including brain health. “Many chronic conditions such as heart disease, type 2 diabetes, and cognitive decline can be prevented or delayed if sleep apnea is diagnosed and treated early,” says ASAP Board Chair Sarah Gorman.
Unfortunately, many people with obstructive sleep apnea remain undiagnosed and untreated.
Although the condition mostly affects men, women also can suffer from sleep apnea and need to recognize their symptoms, which can sometimes be different from those in men. “It is extremely important for anyone who suspects they have trouble breathing at night to talk to their doctor and ask to be screened for sleep apnea,” Gorman says. “Early diagnosis and treatment can be a game-changer for many who are struggling from health consequences related to sleep apnea.”
About the Alliance of Sleep Apnea Partners: ASAP is a U.S.-based 501c3 organization committed to promoting diagnosis, treatment, and prevention of sleep apnea on behalf of the patient community to advance the lifelong well-being of sleep apnea patients.
For more details or to schedule an interview, contact: