To educate patients, caregivers, healthcare providers and the public about Sleep Apnea causes, symptoms, therapies and risks. To provide resources useful to recognize Sleep Apnea signs and symptoms in order to obtain diagnosis and treatment.
Alliance of Sleep Apnea Partners (ASAP) is a 501 (c)(3) non-profit founded in 2018 by a multi-stakeholder group of patients, researchers and healthcare providers. ASAP is an affiliate partner of the Sleep Apnea Patient-Centered Outcomes Network (MyApnea.Org), a PCORI-affiliated program and a virtual community of over 20,000 patients.
As a patient-led group, we are aware of the multiple knowledge and resource gaps patients with Sleep Apnea face. In response, we have developed www.ApneaPartners.Org. This site is designed to be a patient friendly, easy to navigate website to provide education, resources, and tools for helping patients understand the risk factors for Sleep Apnea, consequences of untreated Sleep Apnea, and treatment options for Sleep Apnea.
Gaps We Will Fill
Provider trusted site
Clinicians and therapists need a trustworthy web portal for their patients with Sleep Apnea to access evidence-based information and step-by-step guides beyond that available in a clinic.
Facilitating patient learning
Patients and their caregivers need education and support as they navigate their journey to find and implement Sleep apnea treatment. Imagine one web site where patients can access an understandable glossary of words related to Sleep Apnea, descriptions of the range of treatment options, step-by-step guides of what to expect during a sleep study, expectations of what to expect from treatment, support for living with Sleep Apnea, and much more.
Support patient-centered choice and personalization of treatment
In treating sleep apnea there is literally no “one size fits all” treatment. Our site will help patients identify alternative ways to use PAP and other treatment alternatives, including emerging technologies.
Product and treatment guide and evidence-based data
The site will include a Sleep Apnea specific “Products and Treatment Support” section that will list company, industry and manufacturer sites for patients to learn more about what products are available to them, with categories such as: FDA Approved, Comfort Products, Breathing Support Products and Programs, Weight Loss Programs, Equipment Cleaning and others.
The site is being developed collaboratively by patients and clinicians. It is designed to be a vital resource for individuals, families, caregivers, communities, and schools.
ASAP is currently run by patient volunteers who are donating their time, skills and experience in collaboration with clinicians.
Our official site is www.ApneaPartners.Org and was initially created in partnership with web design students at Brigham-Young University (Idaho).
We are grateful to those who have already contributed to our development. We need/appreciate your donations.
We will be seeking Grants and Partners to support yearly sustainability and the future development of ASAP.
ASAP is seeking Founding Partners to help us inform, educate and raise awareness directly to sleep apnea patients! We would like to keep you informed as we progress. Please email us at firstname.lastname@example.org to receive updates!