Alliance of Sleep Apnea Partners Connecting the World of Sleep Apnea Patients, Providers, Research, and Industry
Connecting the World of Sleep Apnea
Patients, Providers, Research, and Industry
Alliance of Sleep Apnea Partners (ASAP) is a 501 (C)(3) non-profit founded in 2018 by a multi-stakeholder group of patients, researchers and healthcare providers. ASAP is an affiliate partner of the Sleep Apnea Patient-Centered Outcomes Network (MyApnea.Org), a PCORI-affiliated program and a virtual community of over 20,000 patients.
As a patient-led group, we are aware of the multiple knowledge and resource gaps patients with Sleep Apnea face. We have developed a patient friendly, easy to navigate website to provide education, resources, and tools for helping patients understand the risk factors for Sleep Apnea, consequences of untreated Sleep Apnea, and treatment options for Sleep Apnea.
Gaps we will fill:
Provider trusted site: Providers need a trusted and user-friendly web portal to refer their patients with Sleep Apnea to access evidence-based information and step-by-step guides that are not readily available in the clinic.
Facilitating patient learning: Patients need education and support as they navigate their journey to find and implement Sleep Apnea treatment. Imagine one web site where patients can access an understandable glossary of words related to Sleep Apnea, descriptions of the range of treatment options, step-by-step guides of what to expect during a sleep study, expectations of what to expect from treatment, support for living with Sleep Apnea, and much more.
Support patient-centered choice and personalization of treatment: In treating Sleep Apnea there is literally no “one size fits all” treatment—and our site will help patients identify alternative ways to use PAP and treatment alternatives, including emerging technologies.
Product and treatment guide and evidence-based data: The site will include a Sleep Apnea specific “Products and Treatment Support” section that will list and link to company, industry and manufacturer sites for patients to learn more about what products are available to them.
Community-support: The site is being co-developed by patients, and is designed to be a vital resource for individuals, families, caregivers, communities, and schools.